Saturday, I called the pediatrician and got one of the other docs in the practice. She wasn't comfortable calling in a prescription on Zantac for babies so young and little and wanted us to wait it out over the weekend and she would see if she could get us an emergency appointment with a pediatric gastroenterologist today. She also wanted us to try switching them to a soy formula to see if that made any difference. It made a difference alright - it's a lighter formula so it was easier for them to spit it up! I called again this morning to speak to the doctor we saw on Thursday and he agreed right away to call the prescription in to the pharmacy. I picked it up on my way back from visiting Golda and we have started it!
Golda is doing well. She got her last dose of antibiotic today and they took out her IV. I have been asking about when she will get her Synergis shot (the RSV vaccine) and her hepatitis B vaccine and they finally told me today that she can have them and they will discuss it tomorrow at rounds. She had a repeat CBC today and it showed that her white blood cell count is back down to normal. Phew. It also showed that her hematocrit (proportion of red blood cells) was borderline low. They are going to watch it before deciding to give her another blood transfusion. The interesting part here is that the intermediate facility cannot do blood transfusions so she may have to stay a little longer until they determine that she is hematologically stable as well! We will see what happens.
I have actually gotten to see Golda two days in a row. I went yesterday with Auntie and Auntie was so excited because she got to hold her!
Yesterday, Golda weighed 1622 g (3 lbs. 9.21 oz.) and today she weighed 1658 g (3 lbs. 10.48 oz.)! I went to see her again today because I had an appointment at the medicaid office at LIJ. Babies that are born weighing under 1 kilogram and / or are in the NICU for at least 30 days are automatically eligible for medicaid. I had to bring in paperwork so they could file the application for us. Then I visited with a supervisor for the social workers since I am not happy with our social worker. Aside from lying to me about the possibility of St. Mary's she hasn't been the friendliest or most helpful of people. This woman was much more helpful and is going to look into the treatment plan the doctors are going by now so we can have some idea of when Golda will actually be ready for a transfer. After that stop I went by the Child Health Plus desk to inquire about it and got some information. Next I went to the admitting office and gave them our new insurance cards, or rather cards, since six people do not fit on one card! They went over all our information with me and gave me a booklet on hospital services and policies complete with the state's patient bill of rights. That was what I have been wanting so we can figure out our recourse if they want to transfer Golda before we are ready. I topped off the day at LIJ with my visit with Golda. Her g-tube site is looking much better and she was sleeping calmy, very soundly once I was holding her.Anyway, I am going to sign off for now since I am quite pooped after all my running around. Remember, tomorrow is election day - don't forget to vote!!! Obama '08!
Oh, and I posted some photos of Harry's school parade. You can see our little train engineer parading around. Enjoy! http://picasaweb.google.com/WindyNYC/PS232HalloweenParade2008#
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