Good Morning! I have been having a little bit of a lazy morning today, but I will have to get going shortly so I will try (ha!) to be brief.
They are all doing very nicely. When we (me and Deena, Jon slept in the car) got to LIJ to see Golda yesterday she was still on her CPAP even though they had told me she was going to be trialing off it that morning and they expected good results. We had to wait a while for the nurse since she was doing a procedure on another baby, but when she came over she told us that they had tried her off but she needed to go back on within five minutes. I was disappointed, but it didn't last long. The nurse offered to let me hold her and I very quickly agreed! I was finally getting to hold my little Golda! And, even better, the nurse said that since we were there, she would trial her off the CPAP again. So, I actually got to hold her and see her cute little face. Since she is so small it still has a more skeletal appearance than her siblings so its hard to see what she will look like when she plumps up more, but she definitely has my pointy chin. When I called to check on her this morning they said she was still of the CPAP and had no problems all night! And she is still off her bili lights. Her weight is 1054 g (2 lbs 5.17 oz.) now.
Leah was back on her bili lights yesterday so I didn't get to hold her and she was still under them when I called to check on her this morning. However, the lights are doing nothing to stem her appetite and she is now taking 16 ml of breast milk every three hours. They tried to feed her the other day by bottle, but she really wasn't interested and they haven't tried again since they don't want her to waste calories trying to suck. They have discontinued her supplemental lipids though since she is doing so great on the breast milk. Her weight is now 1365 g (3 lbs. 0.14 oz.). She is now the only one using any supplemental breathing assistance - her oxygen cannula.
Micah is doing great. He is now taking 20 ml of breast milk every three hours, alternating bottle and NG tube. The nurse thought that they would increase his feeds today at rounds and maybe tonight stop his lipids, with the remaining supplemental food stopping tomorrow. That would mean he could have all his IV's removed!!! I won't get my hopes up for that though since that was her speculation and not a plan for treatment. Micah weighs 1780 g (3 lbs. 14.78 oz.).
We are going to hit Sukon's tent sale to see what they have and then head to the hospital. I will update tomorrow!
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